As parents of a child with Cerebral Palsy, my biggest fear is what will happen after we die. Planning for our future includes ensuring Dougie will be cared for financially, physically, and emotionally. We have a plan in place, and you should too.
The biggest tip we can offer is to begin building relationships with the people who will execute your end-of-life plans now. From our lawyers to our medical advocates to our family of caregivers, Dougie meets and gets to know every member of the team of people who will be responsible for his well-being. Nothing provides peace of mind like knowing Dougie will be surrounded by people he knows and trusts when we are gone.
Resources
Preparing for a Life After Death: A Guide for Parents of Adult Children with Special Needs
Create a Plan for an Adult Child with Disabilities
Long-Term Planning: Legal Matters to Consider
Ways to Provide for Your Disabled Adult Child’s Future
Planning for Adult Children with Disabilities
